By: chris.placitella @ Aug 28, 2009
To become involved you should contact an organization either locally or nationally to find out what you can do.
Here are a few of the organizations, advocacy organizations, and foundations that are leading the way and providing information for mesothelioma victims and their families:
Asbestos Disease Awareness Association
ADAO is the largest non-profit organization dedicated to preventing asbestos exposure to eliminate disease. The association encourages everyone to become a part of their ADAO family, and are a resource for information and how get involved, advocate for the cause and help make asbestos disease a thing of the past!
The Mesothelioma Applied Research Foundation
The Mesothelioma Applied Research Foundation is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma.
Their mission is to marshal and utilize these resources responsibly, as effectively as possible and with financial transparency to:
Offer hope and support to patients and families by educating them on the disease, helping them to obtain the most up-to-date information on treatment options and to connect with meso treatment specialists, and providing them assistance, emotional support and community with others;
Fund the highest quality and most promising meso research projects from around the world through rigorous peer-review; and
Raise awareness of meso, and advocate that the public and private sectors partner in the effort to cure it by directing the resources needed to stop this global tragedy.
Katie’s Hope Foundation for Mesothelioma
Katie’s Hope Foundation for Mesothelioma is a grass roots organization founded by the wife of a mesothelioma victim. Their mission is to fund medical research to find a cure for Mesothelioma and to help patients and their families devastated by the diagnosis of malignant Mesothelioma.
Mesothelioma Research Foundation of America
The Mesothelioma Research Foundation of America has a mission: fund research that will lead to the quickest cure for mesothelioma. Since the year 2001, the foundation has funded the opening of the Mesothelioma Laboratory under the supervision of Dr. Gill at the USC/Norris The Board Members are from the left United Association International Representative James W. Kellogg, Board Member; Jerry Neil Paul, Founding Director; Elizabeth Ann Paul, Executive Director; and Dr. Parkash Gill, M.D., Chairman of the Medical Advisory Board. Comprehensive Cancer Center in Los Angeles. In the process, Dr. Gill (a board certified oncologist and hematologist) has received FDA approval from the U.S. Government to do Phase I Clinical Trials on a new mesothelioma treatment drug called Veglin, whose research was 100% funded by the foundation. It proved successful in Phase I and Phase II of the clinical trials for Veglin began July 30th, 2004. Their mission is to provide more effective treatment over what presently is available for mesothelioma victims.
National Mesothelioma Foundation
The National Mesothelioma Foundation is a non-profit organization supporting mesothelioma patients and their families. They provide information and help for those undergoing treatment for this disease